I was diagnosed with temporal lobe seizures when I was a teenager. What you described is very similar to my experience ... with the aura as you sense the seizure coming on, followed by a period of disorientation and short-term memory loss. As I got older, I learned to sense them coming on, and at times felt as-if I could almost fight them back and prevent them from occurring in some instances, but maybe that was just me pretending I had more control over them than I actually did.
When they did occur, I'd find myself "detached" from whatever environment I'd been in, and then struggling to re-engage with those around me. Most-strange was that I found in some cases I'd not only forgotten memories but also feelings I'd had for others. Try re-learning that you love your girlfriend after a seizure.
I went through numerous EEGs, sleep-deprevation EEGs, MRIs and a slew of other tests and was able to regulate the seizures using medication. But it did impact my life. It prevented me from pursuing a career that required a clean bill of health despite having my condition under control with medication.
Later in life, when I was planning to have children, I worked with my doctor to reduce then eliminate my medication. Though there was no indication that it would cause a problem, it wasn't something I wanted to risk. I've been off of the medication for about 10 years and seizure-free for over 20 years - long enough where I've stopped keeping track.
I have no explanation for why I no longer have these seizures but I feel fortunate that it's something seemingly very much in my past.
For me, when I looked up online and saw my symptoms were pretty much exactly temporal lobe seizures, I went to see a doctor at the Mayo Clinic (I'd tried a local one but I had to see a normal doctor first before a referral to a more specific one and that process was not the best) and the Mayo doctor did an EEG, MRI, and pointed at the tumor that was causing the seizures.
The medication is a huge problem, considering how many side effects there are and trying to find the right one is so difficult. I've very jealous that you were able to get off the meds.
These types of medical problems seem so random and crazy things can happen. I always wonder what it'd be like if we had these problems 50 years in the future when the knowledge of seizures and medicine has made much more progress.
When they did occur, I'd find myself "detached" from whatever environment I'd been in, and then struggling to re-engage with those around me. Most-strange was that I found in some cases I'd not only forgotten memories but also feelings I'd had for others. Try re-learning that you love your girlfriend after a seizure.
I went through numerous EEGs, sleep-deprevation EEGs, MRIs and a slew of other tests and was able to regulate the seizures using medication. But it did impact my life. It prevented me from pursuing a career that required a clean bill of health despite having my condition under control with medication.
Later in life, when I was planning to have children, I worked with my doctor to reduce then eliminate my medication. Though there was no indication that it would cause a problem, it wasn't something I wanted to risk. I've been off of the medication for about 10 years and seizure-free for over 20 years - long enough where I've stopped keeping track.
I have no explanation for why I no longer have these seizures but I feel fortunate that it's something seemingly very much in my past.